This is Organ Donation Week and health chiefs have unveiled a sculpture to commemorate those lost and give hope to those waiting for a transplant.
The sculpture, called The Thread, was created by Michelle Castles.
She said: “The sculpture is called The Thread because we are all connected through our humanity.
“We are all tied to each other and it’s important that we have the feeling of community and connection.
“I was inspired by the personal stories of those affected by organ donation. Artwork is always a talking point and the purpose of this – whether you like it or not – is to start a conversation.”
The North Cumbria Integrated Care NHS Foundation Trust hosted two events to celebrate and honour organ donors in the county.
People can be living donors and around 40 people – donors and recipients attended the events.
As part of Organ Donation Week, families whose loved ones have died have also spoken about how important it is.
Gary Bayliff
Gary Bayliff, 43, of Mirehouse, Whitehaven, died after an accident in 2001.
Gary’s family had never had a conversation about organ donation but decided it was what he would have wanted.
Mel, Gary’s mum, said: “Gary was the third child of six – a happy, carefree person who was very well loved by his family, his friends and most people who knew him.
“At the time of Gary’s death, it was the hardest decision to ever have to make. The doctor and nurses came in to the family room to explain to us that he was not going to make it. They asked if we wanted to donate his organs and left us to discuss it.
“All of the family were there and we talked about it and all had an input. Even though we were too upset to even think about the difference it would make, we knew it was the right thing to do, and that one day when the grief wasn’t so raw that it would make us happy to know that Gary lives on in others.
“He helped three other people become well enough again to be able to enjoy life. Finding out the difference he made from the recipients of the organs made us all so proud. We know that Gary would be too.
“Hearing from the recipients was always going to be bittersweet. It was a rollercoaster of emotions receiving letters from them all, but one of the recipients in particular made us really emotional with her thank you letter.
“She explained that she is alive because of Gary and she promised to live her life to the fullest. She explained the impact not only to her but her partner too. It still makes me cry to read it, but at the same time, happy and proud. This young woman lives on because of Gary.
“When we discussed organ donation, we only really thought about the person receiving the organ, we had never thought about the positive impact it would have on their family too. It makes a difference to so many lives, not just the person receiving the organ. So for the three people who received the organs, not only did their lives improve but so did their families lives as a result.
“If there was anything positive we can take from Gary’s death then this is it. We lost our son and brother and that grief and pain will never go away, but the grief and pain will always be there regardless of what happened to Gary’s organs, so why would we not take the opportunity to help other people?
“To know that he was still helping others in death makes us immensely proud.”
Pauline Brown
After a lifetime dedicated to caring, nurse Pauline Brown donated her organs and continued to save lives even after her death.
Pauline Margaret Armstrong was born and raised in Longtown, near Carlisle, and joined the city’s Cumberland Infirmary as a trainee nurse straight from school. She retired in 2015, as a ward sister, specialising in elderly care.
She died unexpectedly in 2022.
Pauline’s family said they were keen to raise awareness of the importance of organ donation and the emergency first aid that made it possible.
They said: “As a former nurse, having dealt with end-of-life care throughout her career, she was a huge advocate for organ donation and had always talked openly with our family about her wishes. As well as carrying the older donor card, she had signed the online organ donation register, several times over the years, just to make sure.
“Even after a lifetime of caring, she was determined to help others after her passing. We hope that by sharing this we can inspire and encourage others to sign the organ donation register, raise awareness, and save more lives.
Pauline married her childhood sweetheart, Paul Brown, and they had been a couple for nearly 50 years and married for 46. They raised three children – Kerry, Vikki and Gavin, have 12 grandchildren and two great-grandchildren.
They explained that Pauline’s death was very unexpected: “In November 2022, she met up with three of her former nursing colleagues, and long-time friends. They all had a lovely time and mam was in good spirits and showing no signs of illness. On their journey home in the car, she suddenly became unwell and quickly unresponsive. Realising something was very wrong, her dear friends, Barbara Kidd and Helen Jackson, pulled the car over and called the emergency services.
“Barbara and Helen stayed calm and talked to mam, reassuring her, while they awaited medical assistance. When mams pulse stopped, they immediately began CPR, continuing until the first responders arrived and, shortly afterwards, the paramedics. Barbara, Helen and the emergency response teams worked tirelessly to help her.
“Mam was taken to the Cumberland Infirmary, where A&E staff and doctors tried to stabilise her, while trying to figure out what had happened. Following a head CT scan, we were advised that she had suffered what they believed to be a catastrophic bleed on the brain. She was immediately transferred to the Intensive Care Unit (ICU). All the hospital staff were all kind, gentle and understanding, carefully explaining what was happening at each stage.
“The following morning the doctor explained that he believed she was brain stem dead, meaning her brain had died. This devastating prognosis instantly turned our lives upside down and the hope that we had for her recovery quickly disappeared. Through tears, our dad Paul, was able to speak up for mam and tell the doctor that mam wished to be an organ donor.
“Once mam’s diagnosis had been confirmed with tests, the process of organ donation began, and our family was introduced to a nurse from the specialist organ donation team. The nurse explained, gently and respectfully, what would happen next.
“It is a lengthy process and extremely difficult to navigate when you are in shock, trying to comprehend what’s happened. Saying goodbye to your loved one in this situation is a very different process. As a family, we knew we had to remain strong together, and we were able to say our last heartbreaking goodbyes in our own ways.
“The specialist team ensure that donors are treated with the greatest care and respect during the removal of organs and tissue for donation. Retrieval takes place in a normal operating theatre and is carried out by specialist surgeons. Our family received a thankful telephone call from the organ donation surgeon as soon as her surgery was over, with an update on what this had entailed. We were supported and kept informed throughout the entire process.”
Less than two weeks after Pauline’s death, the family received a letter from the NHS Blood and Transplant Donor Family Care Service informing them that Pauline had already helped transform the lives of four people. This included a lifesaving liver transplant, two separate kidney transplants, and donation of corneal tissue to a recipient who has gained improved sight.
They have continued to receive regular updates from the service, advising us of all those who have now benefitted from her donation. In December 2022, just before Christmas, the family received a beautiful, heartfelt letter from the recipient of a kidney. The letter was addressed to ‘the family I will forever be grateful to from a loving husband and father of two children’.
They said: “It was a great comfort to us all, especially over the festive period and the first Christmas without mam.”
“On May 9, our family attended a presentation at the Civic Centre in Newcastle Upon Tyne, proudly wearing our Organ Donor Family, Gold Heart pins. The pins symbolise the generosity we have shown in supporting organ donation. The presentation posthumously awarded mam of The Order of St John, granted by HRH The Duke of Gloucester, and given as national recognition of organ donation.
“As a close knit and loving family, we are devastated at the loss of a truly amazing woman, our angel Pauline, but we are immensely proud of her. She leaves behind a legacy with her generosity that cannot be forgotten – the gift of life. We would urge everyone to sign the organ donation register and have those difficult conversations with your loved ones. When the time comes, leave them certain of your wishes.
Lana Maddison
Lana Maddison, of Wigton, was just 19 when she died in a car accident in 2021.
It is believe she died at the scene as her heart was not beating when the ambulance arrived, however they managed to restart her heart and she was taken to the Cumberland Infirmary in Carlisle, but tests confirmed Lana had broken her neck.
Lana joined the organ donation register two years previously and told her family about her wishes. Knowing what Lana wanted made a devastating situation that little bit easier for her family and the organ donation process gave them a little more time to say their goodbyes.
Lana’s mum, Lisa said: “I believe Lana made it to Carlisle in time so that she could donate her organs. We had discussed organ donation a couple of years earlier. I remember being in the kitchen when Lana was completing her donation form online at the age of 17, we laughed as she told me she didn’t want to donate her eyes or heart, I said ‘don’t worry Lana, I doubt anyone would want your eyes as you can’t see very well anyway.’
“So, when we were approached in ITU, there was really no decision for us to make, we already knew her wishes. Lana was very caring and compassionate; we knew we had to follow her last wishes through.
“After 72 hours in Carlisle Lana was transferred the RVI in Newcastle. This was the only time we left her side, but we followed her in the car. She underwent a number of MRI scans and tests to confirm that life was not viable.
“We were with her constantly, the nurses were fantastic, not only nursing our daughter but caring for us as well. They wanted to know all about her: what her interests were and to see photos of her, this was so comforting.
“Lana was full of life, and constantly on the go. She was studying at university, working 12-hour shifts on placement, holding down a part time job as a waitress so that she could run her beloved white ford fiesta, Rory. She was also an active member of the Young Farmers in Wigton, organising balls and charity events.
“The nursing staff looked after Lana like she was one of their own, they played music, talked to her and plaited her hair, and I cannot tell you how grateful I am for the care she was given.
“We spoke to the organ donation nurse at the RVI, completed all the paperwork ready for Lana to go to theatre the following day. This wasn’t easy, how can it be? But it was made bearable by the care and compassion that was shown to us, we went at our speed and never felt rushed or pressured at all.
“That night I was allowed to wash, dry, and straighten Lana’s hair ready for theatre, this time was absolutely precious to us as a family of four. The following morning family came to say their goodbyes, once again this was never rushed.
“We were given the choice to say our goodbyes on the ward or we could accompany her to theatre to be with her when the breathing apparatus was removed.
“This was an easy decision for us, we wanted to be with her. We saw her into the world we were going to see her out. We were gently talked through the process and what to expect, this would not be for everyone, but it was definitely the right decision for us as a family. Once again, the nursing staff were right by our sides supporting us and even sourcing music on their phones to play.
“Four hours later we received a phone call to say that Lana had donated two kidneys, pancreas, liver and a lung, four recipients had received lifesaving organs. A lady in her 30s received a kidney and a pancreas, a young school age girl received a kidney, a lady in her 60s received a liver and a gentleman also in his 60s received a lung.
“The following day we were allowed to see Lana in the chapel of rest, she was beautiful, just as we had left her the day before, her hair was perfect, she even had a little smile on her beautiful face, we knew then we’d done the right thing, Lana was happy.
“We are immensely proud of Lana, not only the career she chose in life but also how a beautiful young girl chose to help others after her death. Knowing this has brought comfort to us as a family, she gave the greatest gift, life to others.”
To register for organ donation, visit https://www.organdonation.nhs.uk/register-your-decision/
